April 2022
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Pallium India’s trustee, Ashla Rani has been selected to be a ‘diarist’ for the third series of the NCD Diaries, to share her experience of living with Non-Communicable Diseases (NCDs) and to raise awareness about ways countries can strengthen their health workforce to match requirements and deficiencies.
The Diaries project is part of the NCD Alliance’s ‘Our Views, Our Voices’ initiative, to provide a platform for diarists to share their life through an audio, written or visual medium to the world, showcasing everyday challenges, hopes and changes they would like to see.
Each series will comprise of three episodes on a selected topic. Ashla’s diary will include her compelling insights and experience on the topic ‘My healthcare providers’ impact on my NCD journey’.
The project aims to develop a public narrative that puts people first and builds awareness of challenges experienced by those living with NCDs. The diarists will draw on their unique local contexts, highlighting their day-to-day challenges and personal realities.
100 Virtual Trainings!
In March 2022, with the commencement of our 100th Virtual Training Program, Pallium India has crossed a major milestone in our efforts to enable healthcare professionals in reducing unnecessary health-related suffering. A proud moment for the Virtual Education department, as well as for everyone associated with Pallium India.
Our virtual education journey that started in 2017, with the help of our partners Project ECHO and ECHO India, has enabled us to reach around 4500 individuals in 20 countries and all states of India.
Do unto patients as they would want done unto themselves
Dr Harvey Chochinov, the founder of Dignity Therapy says, “The Golden Rule—do unto others as you would have them do unto you—conveys deep wisdom”. But …
‘He/She’ is not ‘you’. What ‘he/she’ wants is what is relevant here.
Please read the article and absorb the profound wisdom:
Palliative Care Is the Umbrella, Not the Rain – A Metaphor to Guide Conversations in Advanced Cancer
Referrals to palliative care usually occur in the last weeks of life, leading to untreated symptoms, patient distress, and unnecessary aggressive treatments at the end of life. One of the main barriers to early referrals is that patients tend to associate palliative care with hopelessness, cessation of cancer treatment, and death.
Read more >>
IAPCON 2023
The Indian Association of Palliative Care announces that the 30th Annual International Conference (IAPCON 2023) will be a physical conference held at Bengaluru, Karnataka, organized by Karunashraya.
Dates of event: 10-12 February, 2023
Pre-conference workshops: 9 February, 2023.
The theme of IAPCON 2023 is: ‘Metamorphosis: The emergence of Subspeciality Palliative Medicine’. Please visit the conference website for further details.
Call for Expression of Interest to conduct pre-conference workshops
The McGill International Congress on Palliative Care:
Oct 18-21, 2022
McGill International Congress on Palliative Care: Oct 18-21, 2022: Join the mailing list.
Video of the Month
UN body calls for access to pain medications
Historically, the UN Commission on Narcotic Drugs (CND) had concentrated on prevention of inappropriate and non-medical use of opioid medicines. In a refreshingly welcome initiative, the recent convention of CND emphasised the need for balance, to make essential opioid medicines for pain relief. The 65th CND launched an initiative ‘No patient left behind’ aiming at ensuring patients who need painkillers or narcotic drugs for their medical condition world over can have a better access and availability of the required drugs. Read more >>
Subscribe to Pallium India’s youtube channel for videos related to palliative care and our activities. You can watch previous webinars and training sessions, as well as listen to caregivers, survivors and others sharing their experiences.
Humanising Healthcare through Storytelling – Stories as a tool for transformation
Indian Association of Palliative Care (IAPC) and Pallium India jointly conducted a webinar on ‘Humanising Healthcare through Storytelling – Stories as a tool for transformation’ on Wednesday, 23rd March, 2022, between 7 p.m. and 8:15 p.m.
Panelists: Chinthana Gopinath (Care provider and Care receiver), Joan Marston (Founder, Sunflower Children’s Hospice and Global Ambassador, International Children’s Palliative Care Network), Dr Vidya Viswanath (Palliative Care Physician, Homi Bhabha Cancer Hospital and Research Center), Dr Yogesh Jain (Public Health Physician and Founder, Jan Swasthya Sahyog).
Moderators: Dr Frank Brennan (Palliative Care Physician, Australia) and Smriti Rana (Head, Strategic Programs and Partnerships Division, Pallium India).
Dr Sushma Bhatnagar (President, IAPC) also spoke at the occasion.
Change the Ending: Cervical Cancer – Perspectives on Prevention and Palliative Care
On International Women’s Day, March 8, 2022, Pallium India and CAPED India conducted a webinar on cervical cancer: the only cancer that is 100% preventable yet continues to be one of the most prevalent and painful cancers in women.
Panelists: Mridu Gupta (Founder CAPED India, Leader of Sankalp, Nullife Foundation, Shikshanjali Edu Tech), Dr. Gopukrishnan Pillai (Palliative Care Physician, Senior Public Health Specialist, Swasti Health Catalyst), Navika Harshe (Co-founder A-id, Economist, Research Fellow, Pallium India), Sangeeta Gupta (Educator, Editor, Content developer and Cervical Cancer Survivor)
Moderator: Smriti Rana (Head – Strategic Programmes and Partnerships, Pallium India)
All of us can do our bit to eliminate cervical cancer in our lifetime, and change the way thousands of women live and die. This pledge is for each one of us, irrespective of gender. Spread awareness of the only curable cancer! Click on the link below to take the pledge today. https://capedindia.org/pledge/
✍️ Send us your stories! (Last date extended)
✒️ We invite you to send in your stories – stories that you have experienced as care providers or care recipients, that have impacted your own practice and philosophy.
📚 With your participation, we hope to create a repository of palliative care stories which will demonstrate that, ultimately, it is our stories that make us human, and listening to the stories behind the statistics is what makes care truly compassionate!
📧 Email the stories to: assistant.nio.iapc@gmail.com
📜 Size: 500 words (max)
🗓️ Last date: April 10, 2022.
(A Joint effort by IAPC & Pallium India)
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Contact us: info@palliumindia.org / 97467 45497
Covid-19: A View from the margins – Edited by Yogesh Jain & Sarah Nabia, published by Manohar Publishers and Distributors.
Purchase on Amazon: https://www.amazon.in/Covid-19-Margins-Yogesh-Jain-ed/dp/9391928765/
Contact: 96508 10165
Dr M R Rajagopal’s Walk with the Weary is now available for purchase in paperback (print) format in the USA and the UK.
Amazon USA: https://www.amazon.com/Walk-weary-Lessons-humanity-health/dp/B09WKL2K56/
Amazon UK: https://www.amazon.co.uk/Walk-weary-Lessons-humanity-health/dp/B09WKL2K56/
Amazon India: https://www.amazon.in/dp/B09RPCKS8K/
Upcoming Events
April 7, 2022: World Health Day, “Our planet, our health”
May 12, 2022: International Nurses Day, “Nurses: A Voice to Lead – Invest in Nursing and respect rights to secure global health.”
June 5, 2022: World Environment Day, “Only One Earth”
May 16, 2022: Online Foundation Course in Palliative Nursing (FCPN) in English – ECHO
Aug 24-26, 2022: African Palliative Care Conference
Feb 10-12, 2023: IAPCON 2023
Global Palliative Care and Pain Relief Research Hub (Webinar Series)
Register for this webinar (free): https://mskcc.org/GlobalPalliativeCare
Virtual Asian Mental Health Symposium
Indian Academy of Professional Supervisors (IAPS, https://iapsupervisors.com/) is organizing the Virtual Asian Mental Health Symposium, on 9th and 10th of April, 2022. Pallium India’s Head – Strategic Programmes & Partnerships, Smriti Rana, is one of the speakers.
Click here to know more about the event and to apply: https://www.vamhs.com.au/apply
Check out all upcoming trainings and important days: https://palliumindia.org/events
Contact: info@palliumindia.org
OPENINGS
PALLIUM INDIA, TRIVANDRUM
PANHA LIFECARE
Palliative Care Physician, Mumbai
AZIM PREMJI FOUNDATION
Nurse, Bengaluru
Medical Officer, Bengaluru
EASTERN INDIA PALLIATIVE CARE
Palliative care nurse, Kolkata
DEAN FOUNDATION
Palliative care physician, Chennai
CACHAR CANCER HOSPITAL & RESEARCH CENTRE
Palliative Care Physician, Silchar
VISIT OUR CAREERS PAGE:
https://palliumindia.org/category/career
In case of queries, please write to us: career@palliumindia.org
Patients and families from anywhere in India can call Pallium India’s Telehealth helpline. Health care professionals who need advice on palliative care or pain management can call this number.
The service is FREE and available in English, Hindi, Malayalam and Tamil.
Our lines are open from Monday to Saturday 9:30 a.m. to 4pm
Call: +91 964 588 4889 / +91 860 688 4889
In case of queries, please write to us: info@palliumindia.org
Pallium India maintains a state-wise directory of institutions offering palliative care services in India. The list includes palliative care providers from community-based organisations to tertiary care institutions and cancer care centers.
The directory covers critical information like contact details including phone numbers and email addresses, availability of In-patient, Out-patient and home care services, availability of morphine, etc.
If anyone you know needs palliative care support, our directory will help you find the centre closest to you. Do take a look at Pallium India’s Palliative Care Directory and let us know (Email: info@palliumindia.org or Contact us) if any centre near you is missing.
Lifetime Achievement Award for Dr C. S Pramesh
Congratulations to Dr C. S Pramesh, who received Lifetime Achievement Award at the Indian Society for Clinical Research (ISCR) annual conference in appreciation of his role as a change agent in the field of healthcare, research and patient care. Read more >>
Congratulations to Winners of IAHPC Individual Recognition Awards 2022
The International Association for Hospice and Palliative Care (IAHPC)‘s Individual Recognition Awards celebrate individuals dedicated to developing and providing palliative care to improve the quality of life for patients with serious health related suffering. This year’s winners are: Dr. Olaitan Soyannwo, Dr. Eddie Mwebesa and Dr Billy Rosa. Congratulations! Read more >>
Read more about Dr Billy Rosa, who has won the IAHPC award in the high-income country category.
Ashla Rani receives Women Empowerment Award
Ashla Rani, trustee of Pallium India, has received the Women Empowerment Award 2022, instituted by Bharatakala Art Academy, on March 8, International Women’s Day. Read more >>
Palliative Care for Personality Development in Children
Balajanasakhyam is a children’s collective created by Malayala Manorama newspaper, 93 years ago. Their activities are very varied and are generally aimed at the overall development of the children. On the March 6, 2022, a few units of Balajanasakhyam in Kerala got together to spend an evening of learning on palliative care. Read more >>
World Social Work Day
On March 15, 2022, World Social Work Day, Pallium India organized a small get-together at our premises for the people receiving care in our inpatient facility and their families. Pallium India’s employees also joined in for a much needed break from work.
Akkara Foundation team visits Pallium India
On March 4, 2022, Pallium India was privileged to host a team from Akkara Foundation, Bekal, Kasargode, comprising Mr. Akkara Mohammed Abdul Aziz (Founder & Chairman of Akkara Foundation), Ms. Fareeda Aziz (Director and Head of Operations), Mr Mohammed Yasir (Manager) and Mr. Moideen (Palliative Care Leader). Read more >>
Promising developments in Uttarakhand
Pallium India, in collaboration with National Health Mission (NHM) Uttarakhand, organized an online Workshop on opioid availability. The Uttarakhand NHM has designated Pallium India as their technical partners for developing palliative care in the state. Read more>>
Remembrance Day
Arujivn Healthcare Foundation, a Guwahati-based healthcare start-up, observed “Remembrance Day” on Sunday, March 6, 2022. Read more >>
Don’t live with chronic pain
https://www.newindianexpress.com/cities/kochi/2022/mar/29/dont-live-with-chronic-pain-2435225.html
Hospital admission a patient’s right
Hospitals turning away patients because they don’t have a bystander against medical ethics and it disregards those who live alone.
Attending to the Existential Experience in Oncology: Dignity and Meaning Amid Awareness of Death
William E. Rosa , PhD, MBE, NP; Harvey M. Chochinov, MD, PhD; Nessa Coyle, PhD, RN; Rachel A. Hadler , MD; and William S. Breitbart, MD
https://ascopubs.org/doi/abs/10.1200/GO.22.00038
Palliative Care Expert Interview: Vandana Mahajan
https://silverangels.substack.com/p/palliative-care-expert-interview?s=r
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For DOMESTIC Transfer:
Beneficiary: Pallium India Trust
Account No: 30086491915
State Bank of India
Branch: Pattom, Trivandrum
IFS Code: SBIN0003355
MICR No: 695002007
For FOREIGN donations:
Account Name: Pallium India Trust
Bank: State Bank of India (code: 00691)
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Account No: 40098265669
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Queries? Write to info@palliumindia.org or call 97467 45504
Follow us for palliative care news, views and updates – as & when they happen
SAHAYATRA
Sahayatra, Pallium India’s monthly print magazine in Malayalam, is meant for anyone interested in Palliative Care – patients, families, palliative care professionals, volunteers and well-wishers.
Yearly subscription rate for Sahayatra is ₹200. (Only ₹500 if you subscribe for three years.) However, we send Sahayatra free of cost to patients and their families.
To subscribe to Sahayatra monthly magazine, please send your complete postal address to info@palliumindia.org. Contact: 97467 45504
Read previous issues of Sahayatra online: https://palliumindia.org/sahayatra
PARTING SHOT
Bring smiles to the faces of children – send us toys!
A few years ago, in Pallium India’s paediatric outpatient clinic at S.A.T Hospital, Thiruvananthapuram, one of our team members noticed the delight a bubble gun brought to the children who came to meet the doctor. A little boy, completely engrossed in the bubbles, did not even notice the syringe piercing his skin.
That was our first toy donation drive – the thunderous response from you all ensured that we were fully stocked for such a long time, keeping our children elated and – would you believe it? – eager to visit the hospital.
The little outpatient room, from which wails used to emanate, was transformed – to a place filled with ripples of laughter and squeals of excitement! So much that passers-by had to take a peek, to unravel the mystery.
Was it magic? Of course – what else could it be?
And now, we’re running out of toys and we request your help in recreating this magic. Let’s join hands to bring a smile to their faces and joy to their hearts!
These are what we’re looking for: colouring books, colour pencils, crayons, sketch pens, soft toys.
But please do speak to us before you send anything: 085899 98761 / 097467 45497 / info@palliumindia.org
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