This year, the camp will be held at JMM Study Centre, Nalanchira, Trivandrum, from 1 to 3 May 2014. The event offers a nice blend of learning and fun to the mostly grey lives that these children find themselves in. If you live anywhere near Trivandrum, please email us and drop in one of those days to meet the children.
Our volunteers who organize the event have taken a collection among themselves and raised about Rs. 60,000 (US $ 1000) and find themselves short of about Rs. 75,000 (US S$ 1200 approximately. If anyone would like to help the cause, please go to http://palliumindia.org/donate/
If you are making an online donation, the funds will come through Pallium India – USA through Indians for Collective Action.
“With the help of some medication he lived with us happily for about two more months. He enjoyed the care given to him and we had the satisfaction of serving him when it was needed.”
You can read the complete article by Bindu Nair.
The relevance: apart from treating pain and other symptoms and offering physical rehabilitation and psychological support to patients and families, Pallium India also embarks on vocational rehabilitation. Imagine the difference to self-respect it can make, when someone who considered oneself a burden for the family, now creates works of art and earns for the family!
We have more than 300 students now receiving educational support from us. In addition, wherever possible we empower patients and family members to earn for the family. We also teach the patients some vocation, so that they can earn for themselves. Many also rediscover their artistic talents.
Please visit the Desert Rose from the 26th to 30th of April, organized in co-operation with Alliance Française.
Date: 26 April to 30 April, 2014
Time: 9 AM to 4 PM
Venue: Alliance Française, Forest Office Lane, Vazhuthacaud, Trivandrum
Do please visit and encourage the artists and creators.
In her article “Inappropriate referrals at the end of life – the existing Indian scenario” published in the Official Journal of the Multinational Association of Supportive Care in Cancer, Dr Savita Butola writes about cancer patients who have been unnecessarily referred to higher hospitals instead of someone explaining to them how supportive care can be provided at home. These patients spend the last days of their life wandering from hospital to hospital, getting little attention, wasting a lot of money and time, whereas they should have been with their loved ones in familiar surroundings.
“It is indeed a pity to see how lack of communication skills awareness and clear legal guidelines all result in so many inappropriate and avoidable last-minute referrals just because as doctors we refuse to accept death – the only thing in life that is sure.” she says. “Terminal patients are routinely referred to higher centres even though very often it means that they are declared dead on arrival”. In her opinion, doctors in India are trained to think of death as the enemy to be battled till the end and not as the inevitable consequence of life.
“Poor communication prevents patients and their families from coming to terms with reality, resulting in unrealistic hopes, affecting their ability to make rational choices and prepare for death. Of the estimated seven million deaths each year, almost four million need palliative care, but the majority do not have access to it”.
Dr Savita stresses the importance of palliative care education that would limit inappropriate treatment and the need for communication with the patient and families so as to prepare them for the inevitable.
Shockingly, Moscow’s deputy mayor, Leonid Pechatnikov, nonchalantly dismissed these human tragedies as the result of an “aggravation of psychiatric disorders” caused by the spring.
Read the powerful article in the International Business Times by Mr Diederik Lohman of Human Rights Watch.