22 “middle level” palliative care professionals from various parts of the country got together at Trivandrum from the 2nd to 4th of July for a workshop on palliative care in India. Dr Nandini Vallath and Dr M C Rajashree joined local faculty to serve them an academic feast. The aim: to strengthen a corps of facilitators to advance palliative care in India. In addition to developing skills in facilitating learning, the group discussed and understood the nuances and the current status of India’s National Program in Palliative Care (NPPC) and the recent amendment of the NDPS Act which has the potential to improve opioid access in the country. Pallium India has renewed confidence – in having this strong workforce to carry the movement forward.
Here are some pieces of feedback from the participants.
“One of the most memorable teaching experience was how to streamline the practices – ensuring opioid availability, sensitizing and how to sensitize the people and healthcare professionals alike, ways to facilitate learning, generating funds and to utilize them effectively”.
“Left to myself, my goals were limited and modest, confined to my city and surroundings. But you made us think beyond, bringing in to focus the magnitude of the problem.”
“To witness the passion for palliative care among everybody and especially some of them who expressed their deep concerns – It triggers that drive within you to set forth to achieve your goal despite all obstacles”.
This is not the average patient who comes to a western hospice. The palliative care stream in Kerala, by and large, have chosen to include them in the purview of palliative care. Often we see them with huge, deep pressure sores. Even when the acute urinary infection is controlled and pressure sore is attended to, they are limited to confinement within four walls, because despite a wheelchair being available, no one teaches how to mobilise them. Hardly any home is barrier-free. Though there are side-walks for the roads, there is no slope at intersections, so wheelchairs cannot be manoeuvred into them. No one cares for zebra signs. There are no special facilities for the disabled.
On July 22, five people on wheelchair – one person with quadriplegia and four with paraplegia – got together with government officials, doctors and social activists to discuss how Trivandrum city can be made wheelchair friendly. The discussions were illuminating. We shall prepare the proceedings so that whatever is planned can be shared with the rest of India.
We invite you all to be a part of the ‘Desert Rose 2015′ from 6th to 8th August, at Trivandrum.
Paintings by our patients from the Desert Rose exhibition in 2014
Pallium India looks after about 60 people, mostly young men and women, who are paralyzed from the waist down. Our rehabilitation services offer them physical rehabilitation and teach them some vocation so that they can earn for themselves. Many of them rediscover their artistic talents.
The funds raised from this event will be used for patient care as well as for the education of our patients’ children.
We request your support. If you wish to make a donation to support the event, please contact us.
Date: 06 Aug 2015 to 08 Aug 2015
Venue: Regional Office Canara Bank, Spencer Junction, Statue, Trivandrum
Contact: firstname.lastname@example.org / +91 9746745502
* Mobilise individuals & institutions to contribute resources (financial, material, others) in support of the organisation’s objectives. This is to be done by effectively inspiring new supporters to raise money, while maintaining and developing relationships with existing supporters.
* Analyse data and locate trends in resource development and accordingly evolve plans to improve donor servicing, operations and fund raising.
* Organizing traditional activities
* Raising awareness about the organization and its work at local and national levels
* Overseeing corporate fund raising (CSR)
* Managing and updating databases to record donor contact and preference information
* Making risk analyses and balancing time-cost ratios to focus effort on the most appropriate fundraising activities
* Effectively organise fund raising events in different areas
* Bachelor’s degree required and management experience a plus
* 2-3 years of experience of working in an NGO or demonstrated familiarity with sustainability issues
* Proven track record in fund raising or business development
* Excellent strategic thinker, bridging environment and development challenges with business and government imperatives
* Strong and proven business acumen
* Outstanding communication skills
* Proven relationship building skills. Proficiency in MS-Office required
* A committed team player and an ability to prioritize and deliver on commitments
* Proven ability to work effectively both independently and in a team-based environment
They had qualified to practice medicine about a week back. They were getting their orientation program before they actually start working in the hospital as house surgeons. The venue, MES Medical College, Perinthalmanna, reputedly one of the best private medical colleges in Kerala.
Between Dr Sadasivan Pillai, the Dean, and Dr R Krishnan, the Head of General Medicine, they had decided that their medical education would be incomplete without palliative care.
Here are some words of feedback from the students:
“I realise now that I am RESPONSIBLE… Now I promise that I will actually put my whole mind to mending my ways and to setting a good example, Insha Allah!”
“Now I realise that being a doctor does not mean just curing diseases; it is also treating suffering.”
“The program really helped to change my outlook towards patients. I think these principles will make me a good doctor and, more than that, a good human being.”
“I had seen my uncle, an oncologist, who died of prostate cancer. It was the worst death anyone can have. I have seen him crying loudly in pain. I always wanted to be a part of pain and palliative care program. This workshop has really helped me and gave confidence to join such an institution.”
“I now understand the importance of good communication.”
“The program opened my mind and made me think more about the person who is going to sit in front of me; to have concern about their feelings; to have empathy rather than sympathy.”
We at Pallium India are glad we had the opportunity to spend two full days with them.