At this moment, over a million people in India are in unimaginable pain. We refuse to look the other way. We choose to hear the cry, and to do what we can.
Please join us. Your help is needed.

Patient get-together on World Palliative Care Day

2015 August 24

The theme for this year’s World Palliative Care Day is ‘Hidden Lives / Hidden Patients.’

Most of the patients who are in need of palliative care in developing countries are ‘hidden’. Their plight is not seen by the authorities and they are sent home from hospital with the statement that “there is nothing more we can do.” They are forced to lead the rest of their lives in loneliness and suffering, abandoned by society, devastated financially and emotionally.

In much of the western world, paraplegics and quadriplegics are in the mainstream of society, but in India that is not the case. They are generally confined to the four walls of their homes. The palliative care stream in Kerala has, by and large, chosen to include paraplegics and quadriplegics under the purview of palliative care.

Pallium India wants to give them a day of pleasure by organizing a get-together for them with their families in Trivandrum on October 10, at Shanghumugham Beach. For each patient and family the expense estimated (for food and a gift) is Rs 900 (US $15).

Please donate whatever you can to make this event a happy one for our patients and their families.

For more details on how you can help, please write to us: info@palliumindia.org

A journey into children’s palliative care

2015 August 24

Arif“We were greeted by the smiling, bright faces of five-year- old Arif and eight-year-old Altaf, brothers who have cerebral palsy, a neuromotor condition that presents at childhood. Arif immediately reached out, grabbed my hand and proceeded to teach me to draw. Soon, we were tying glitter bands on each others’ wrists, before moving rapidly from one activity to the next, based on Arif’s breathless whims.”

In this blog, Joshua Muyiwa looks into the world of palliative care for children, at Pallium India’s facility in Thiruvananthapuram.

The current status of palliative care in India

2015 August 21

“There has been a lot of progress in palliative care in India, but the fact remains that despite the passing of almost a quarter of a century of palliative care activity in the country, even today palliative care reaches only about 1% of the people in India.”

In an article published in cancercontrol.info titled The current status of palliative care in India, Dr M. R. Rajagopal, Chairman of Pallium India, writes about the emergence of palliative care in the country – its origins, the barriers to opioid availability and how some of those barriers came to be simplified thanks to the continued efforts of many people from India and abroad, and the current status.

Read the complete article at: http://www.cancercontrol.info/wp-content/uploads/2015/07/57-62-MR-Rajagopal-.pdf

Narratives on Pain and Relief: Giving voice to the voiceless

2015 August 17

In another step forward, the Journal of Pain and Palliative Care Pharmacotherapy now has a page on the website where all the narratives published so far can be accessed.

If you are in any way connected with palliative care, you must be having a story in you, that touched your heart. Do please put it in writing and send it to us: info@palliumindia.org. You get an indexed publication to your credit. And also the satisfaction of having helped the cause. Read more here.

Here are some of the narratives that have been published:

Through the Eyes of Child: Mary Macey’s reflection on her childhood and adolescence, after losing her mother and how palliative care brought her experience into focus.

When Two Worlds Meet: Lyndsey Brahm writes about the cultural immersion that she experienced when she visited the east from the west.

They Suffer in Silence: Savita Butola writes about the intensity of grief, related to life-limiting disease in the developing world.

Pain – When It Affects the Person: the impact of pain on the body and mind, written by Edassery Divakaran

A needed barrier to pain relief

2015 August 17

Concerned over the welfare of people with dengue fever, the Delhi government has banned over-the-counter sale of NSAIDs without prescription.

The impact is questionable, because all over the country, prescription drugs are sold over-the-counter without prescription, though the regulations may not permit it. Feeble attempts in the past at curbing this practice have failed to make an impact. The ethical right and wrong of it, perhaps, is difficult to decide because such a vast number of Indians do not have access to doctors anyway.