Most of the patients who are in need of palliative care in developing countries are ‘hidden’. Their plight is not seen by the authorities and they are sent home from hospital with the statement that “there is nothing more we can do.” They are forced to lead the rest of their lives in loneliness and suffering, abandoned by society, devastated financially and emotionally.
In much of the western world, paraplegics and quadriplegics are in the mainstream of society, but in India that is not the case. They are generally confined to the four walls of their homes. The palliative care stream in Kerala has, by and large, chosen to include paraplegics and quadriplegics under the purview of palliative care.
Pallium India wants to give them a day of pleasure by organizing a get-together for them with their families in Trivandrum on October 10, at Shanghumugham Beach. For each patient and family the expense estimated (for food and a gift) is Rs 900 (US $15).
Please donate whatever you can to make this event a happy one for our patients and their families.
For more details on how you can help, please write to us: email@example.com
In an article published in cancercontrol.info titled The current status of palliative care in India, Dr M. R. Rajagopal, Chairman of Pallium India, writes about the emergence of palliative care in the country – its origins, the barriers to opioid availability and how some of those barriers came to be simplified thanks to the continued efforts of many people from India and abroad, and the current status.
Read the complete article at: http://www.cancercontrol.info/wp-content/uploads/2015/07/57-62-MR-Rajagopal-.pdf
If you are in any way connected with palliative care, you must be having a story in you, that touched your heart. Do please put it in writing and send it to us: firstname.lastname@example.org. You get an indexed publication to your credit. And also the satisfaction of having helped the cause. Read more here.
Here are some of the narratives that have been published:
Through the Eyes of Child: Mary Macey’s reflection on her childhood and adolescence, after losing her mother and how palliative care brought her experience into focus.
When Two Worlds Meet: Lyndsey Brahm writes about the cultural immersion that she experienced when she visited the east from the west.
They Suffer in Silence: Savita Butola writes about the intensity of grief, related to life-limiting disease in the developing world.
Pain – When It Affects the Person: the impact of pain on the body and mind, written by Edassery Divakaran
The impact is questionable, because all over the country, prescription drugs are sold over-the-counter without prescription, though the regulations may not permit it. Feeble attempts in the past at curbing this practice have failed to make an impact. The ethical right and wrong of it, perhaps, is difficult to decide because such a vast number of Indians do not have access to doctors anyway.