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Now that the final judgement (2023) on end of life care from the Supreme Court of India is out, and now that a few weeks have passed, we ask, “What would it all mean anyway?”
Though the Supreme Court’s 2018 verdict validated advance medical directives (living will) and withdrawal of life-support, the Court put in such a procedural nightmare that in the 5 years to follow, not even one person in our country of 1.3 billion people could benefit from the verdict. Now some of the procedures are done away with – we no longer need the magistrate and district collector as part of the procedure; but many tangles remain. Two committees are still needed. The first has to give its report in 2 days, but no absolute time limit has been decided on for the second committee’s report.
And the verdict continues to refer “Allowing natural death” as passive euthanasia, a sad misnomer.
And in the meantime, in a prominent Delhi hospital, the body of a brain-dead parent of a doctor stayed on a ventilator for a whole week, because “withdrawal of life support was legally not permitted”.
And most of us sit back in complacence, thinking it is all someone else’s problem.
Manjuthulli, Pallium India’s annual exhibition & sale of paintings and other arts & crafts is back.
Purchase a beautiful painting to adorn your walls, and you will simultaneously be supporting patients and families who need palliative care. The aim of Manjuthulli is to raise funds for our patient care activities including free medicines, food-kits, educational support, rehabilitation and more.
Please join us!
Date: 2023 March 10, 11, 12
Venue: Museum Auditorium, Thiruvananthapuram.
Contact: 94962 84894
(Click on the image to enlarge)
‘Walk with the Weary’ (2nd edition) released at IAPCON in Bengaluru
The new edition of ‘Walk with the Weary – Life Changing Lessons in Healthcare’ by Dr M R Rajagopal, published by Aleph Book Company, with a Foreword by Dr Shashi Tharoor MP, was released at IAPCON 2023, Bengaluru by Dr Nagesh Simha (Medical Director, Karunashraya Hospice) and Dr Sushma Bhatnagar (President of IAPC and the Director of the WHO Collaborating Centre at AIIMS, New Delhi). Dr Seema Rao also spoke on the occasion.
This was followed by a book-signing by the author.
In Walk with the Weary: Life-changing Lessons in Healthcare, Dr Rajagopal knits his own experiences as a doctor with stories of the unique lives of his many patients, asserting that medicine can bring comfort and security to those at their most vulnerable and provide them the opportunity to not only live healthy lives but to die with dignity. Read more about the book.
Get your copy of “Walk With the Weary” here:
Amazon IN: https://www.amazon.in/Walk-Weary-Dr-M-Rajagopal/dp/9393852448
Aleph Book Company: https://www.alephbookcompany.com/book/walk-with-the-weary-life-changing-lessons-in-healthcare/
If you have already read the book, please leave a review on the website or email it to us: email@example.com
Awards presented at IAPCON
Cancer Aid Society’s International Award for Excellence & Leadership was awarded to Babu Abraham (Pallium India’s Head-Social Engagement Dept) at IAPCON2023 in Bengaluru. Dr Arjun Devarajan received the award on behalf of Babu Abraham.
Dr Arjun Devarajan (Senior Palliative Care Physician & Section Head-Medical Services, Pallium India) was awarded Bruce Davis Gold medal from the director of NIMHANS, Dr Pratima Murthy, on Feb 11, 2023 at IAPCON in Bengaluru.
Pallium India at IAPCON 2023
Ron Sangma, Regional Coordinator NE – State Facilitation, writes:
The theme of Indian Association of Palliative Care Conference (IAPCON 2023) held at Bengaluru, Karnataka, on 10-12 February 2023 was “Metamorphosis: The Emergence of Subspeciality Palliative Medicine”. It was a three-day workshop designed to raise awareness and further enhance palliative care to integrate in other medical speciality, with the inclusion of technology. A vivid example we heard from the speaker on the emergence and transformative advances in Artificial Intelligence (AI) that may have the potential to help us accelerate our progress towards the work we do in palliative care and eventually augment our success but the stakes are high too. The use of AI tool comes with risks and potential for harm. AI to be used responsibly.
The last IAPC conference I had attended in person was in 2020. So I felt it was the right moment and a great platform for the facilitation team to attend the sessions, talk and meet the palliative care advocates and practitioners coming from across the globe. Indeed great learning, good connects and more new opportunities for the facilitation team to further take the cause of palliative care to our respective region.
Continue Reading >> https://palliumindia.org/2023/02/facilitation-team-at-iapcon-2023
Pre-conference workshop for nurses, at IAPCON 2023
Dr A. Latha writes:
Nurses play a major role, and they are considered the backbone of the healthcare industry as they are skilled care providers and also patient advocates. Palliative care nurses provide an integrative and multidisciplinary approach to address patients’ physical, mental, social and spiritual concerns and aim to improve the quality of life of the patients. Hence these nurses need to acquire evidence-based advanced nursing skills to build their capacity and empower them.
Keeping these concepts in mind, we, the pan India palliative care nursing team, planned the Pre-conference Workshop with the theme of Augmenting Skills for Palliative Care Nurses at the 30th Annual International Conference (IAPCON 2023)of the Indian Association of Palliative Care held at Bengaluru, Karnataka, organised by Karunashraya. The main conference theme was Metamorphosis: The emergence of Subspeciality Palliative Medicine.
The pre-conference workshop was organised on 9 February 2023. The objective of the pre-conference was to comprehend the essential competency needed for palliative care nurses, was to enhance skills in ostomy care (colostomy and tracheostomy), master in caring for patients with lymphoedema, accurately calculate and administer pain medications, including morphine, to patients (morphine trial and subcutaneous infusions).
Continue Reading >> https://palliumindia.org/2023/02/pre-conference-workshop-nurses
Video of the Month
Setting the House in Order – a practical conversation about financial planning to minimise suffering post bereavement
Speakers: M. Murali & S. Saravanan
Moderator: Smriti Rana
Some of the topics covered:
– Will writing
– Estate Planning
Click here to watch: https://www.youtube.com/watch?v=DVG-ltxL5i8
Subscribe to Pallium India’s youtube channel for videos related to palliative care and our activities. You can watch previous webinars and training sessions, as well as listen to caregivers, survivors and others sharing their experiences.
Athulya Senior Care and Pallium India have collaborated to launch palliative care services in the organized senior care sector across South India
The training of doctors, nursing staff, and other key members at all Athulya Senior Care centres will be provided by Pallium India, focusing on pain and symptom management, end-of-life care, and communication skills, among other essential areas. Dr. Sreedevi Warrier, Head of the Education and Skill-building division of Pallium India, said, “Our goal is to make Palliative Care accessible to all who need it. By working with Athulya Senior Care, we are bringing this critical service to senior citizens in South India and training the clinical team to provide the highest quality care.”
Read more in Deccan Herald: https://www.deccanherald.com/brandspot/pr-spot/athulya-senior-care-takes-a-bold-step-to-provide-palliative-care-services-for-seniors-in-south-india-1193046.html
Palliative Care Unit launched at Hiranandani Hospital, Vashi
Hiranandani Hospital, Vashi, a Fortis Network Hospital has launched palliative care services.
This palliative care unit has been set up in accordance with Pallium India’s guidelines, which aim to catalyse the development of effective pain relief and quality palliative care services & its integration across healthcare platforms.
Read more in Express Healthcare: https://www.expresshealthcare.in/news/hiranandani-hospital-launches-palliative-care-unit/438268/
Patients and families from anywhere in India can call Pallium India’s Telehealth helpline. Health care professionals who need advice on palliative care or pain management can call our numbers.
The service is FREE and available in English, Hindi, Malayalam and Tamil.
Our lines are open from Monday to Saturday 9:30 a.m. to 4pm
Call: +91 964 588 4889 / +91 860 688 4889
In case of queries, please write to us: firstname.lastname@example.org
Pallium India maintains a state-wise directory of institutions offering palliative care services in India. The list includes palliative care providers from community-based organisations to tertiary care institutions and cancer care centers.
The directory covers critical information like contact details including phone numbers and email addresses, availability of In-patient, Out-patient and home care services, availability of morphine, etc.
If anyone you know needs palliative care support, our directory will help you find the centre closest to you. Do take a look at Pallium India’s Palliative Care Directory and let us know (Email: email@example.com or Contact us) if any centre near you is missing.
CAREERS / OPENINGS
Openings in Pallium India
Regional Coordinator – North India, Delhi / Chandigarh
Medical Social Worker, Trivandrum
Administrative Assistant, Trivandrum
For more openings across the country, visit our CAREERS page:
In case of queries, please write to us: firstname.lastname@example.org
Follow us on Social Media for updates
Contact us: email@example.com / 97467 45497
Events / Courses
2 March 2023
6 weeks Certificate Course for doctors and nurses (CCPPM & CCPN) – at Trivandrum
Doctors and Nurses, join this six weeks certificate course in pain management and palliative care, at Trivandrum.
Start Date: 2 March 2023 (Thursday)
CCPPM: M.B.B.S or BDS with permanent registration with medical / dental council.
CCPN: Any nurse holding a recognised degree or certificate in nursing.
Venue: Pallium India, Aisha Memorial Hospital Building, Paruthikkuzhy, Trivandrum.
Contact us: firstname.lastname@example.org / (+91) 85899 98760
18 March 2023
Online Certificate Course in Palliative Care (CCPC)
Public Health Foundation of India (PHFI) and Trivandrum Institute of Palliative Sciences (TIPS), a WHO Collaborative Centre for Training and Policy on Access to Pain Relief under Pallium India, have partnered together to develop a Certificate Course in Palliative Care (CCPC) for doctors.
Start Date: 18 March 2023
1 May 2023
10-day Foundation Course in Palliative Medicine – at Trivandrum
Doctors, your chance to join us in Trivandrum for ten days and be a part of our out-patient, inpatient and home visit programs.
Start Date: May 1, 2023 (Monday)
Eligibility: M.B.B.S or B.D.S with permanent registration with medical / dental council.
Venue: Pallium India, Aisha Memorial Hospital Building, Paruthikkuzhy, Trivandrum.
Contact us: email@example.com / (+91) 85899 98760
6 March 2023
Online Foundation Course in Palliative Nursing (FCPN) in English – ECHO
13 March 2023
Online Foundation Course in Palliative Medicine for doctors (FCPM) – ECHO
15 March 2023
Foundation Course in Palliative Care (FCPC) – ECHO
5 April 2023
Web-based Pain Management Education Program for Oncologists
Register: Web-based Pain Management Education Program for Oncologists
13 April 2023
Essentials of Palliative Medicine for Pulmonologists (Online)
Register: Essentials of Palliative Medicine for Pulmonologists (Online)
21 April 2023
Refresher Course in Palliative Medicine
Register: Refresher Course in Palliative Medicine
The Cardiff University MSc in Palliative Medicine for Healthcare Professionals
Students must complete TWO electronic applications – one to Cardiff University and one to the Commonwealth Scholarship Commission.
Application 1 – Cardiff University
Click ‘APPLY NOW’ link on the Cardiff University course website: https://www.cardiff.ac.uk/study/postgraduate/taught/courses/course/palliative-medicine-for-health-care-professionals-msc-part-time
Application 2 – Commonwealth Scholarship Commission Distance Learning Scholarships
Click here: https://cscuk.fcdo.gov.uk/scholarships/commonwealth-distance-learning-scholarships-candidates/
Candidate applications must be submitted by 16:00 (GMT) on Tuesday 28th March 2023.
Please ensure that your name appears the same of both applications.
Check out upcoming events: https://palliumindia.org/events
Queries? Contact: firstname.lastname@example.org
Click here to donate to Pallium India and lend a hand to our activities.
Donations from US can be made online on http://palliumindiausa.org/
For DOMESTIC Transfer:
Beneficiary: Pallium India Trust
Account No: 30086491915
State Bank of India
Branch: Pattom, Trivandrum
IFS Code: SBIN0003355
MICR No: 695002007
For FOREIGN donations:
Account Name: Pallium India Trust
Bank: State Bank of India (code: 00691)
Account No: 40098265669
IFSC Code: SBIN0000691
SWIFT Code: SBININBB104
Queries? Write to email@example.com or call 97467 45504
After you make a donation, please write to us at firstname.lastname@example.org for the receipt. Kindly provide your name, PAN number, contact number and address for us to issue the receipt.
Follow us for palliative care news, views and updates – as & when they happen
Nijjin’s first movie experience
Nijjin is 5. Recently he watched his first movie in a movie house at Travancore Mall, Trivandrum.
His dad lives with paraplegia and is currently a resident of Pallium India’s halfway home for people living with disabilities (PLWD). Our volunteer Rachel took the lead to give them a movie day today. With a meal at the food court to follow.
Halfway home & paraplegia as part of palliative care? Why, you ask?
Simply because a disability like paraplegia causes serious health-related suffering in a low or middle income country, of a magnitude that people in high income countries may hardly be able to wrap their heads around.
“How did you enjoy the movie, Nijjin?” we asked.
“Adipoleee” Nijjin responded, grinning from ear to ear. Meaning something like “super-duper-fantastic!”
This memory will stay with Nijjin and his parents for a long long time. A little to give; a treasure to receive! It just needed Rachel’s empathy to make it happen.
Sahayatra, Pallium India’s monthly print magazine in Malayalam, is meant for anyone interested in Palliative Care – patients, families, palliative care professionals, volunteers and well-wishers.
Yearly subscription rate for Sahayatra is ₹200. (Only ₹500 if you subscribe for three years.) However, we send Sahayatra free of cost to patients and their families.
To receive Sahayatra monthly magazine by post, please send your complete postal address to email@example.com. Contact: 97467 45504
Read previous issues of Sahayatra online: https://palliumindia.org/sahayatra
Salute to Brave Marjita
Parul Negi writes:
Marjita will always remain one of my favorite patients. I met this bubbly girl full of energy, during my rounds at the Deepsikha Arogya Bhawan in Vashi, Navi Mumbai. Besides my role as a fund raiser, I try to interact with each of the patients and their caregivers in order to understand the physical, emotional and financial rollercoaster ride they go through, which drains them completely.
Marjita, a young, talented girl from Majauli, Assam, suffered from constant pain in her leg. This led to a series of tests at the Tata Memorial Hospital, Parel, and she was diagnosed with Osteosarcoma in the year 2015. Even while undergoing the chemotherapy sessions, Marjita had the energy and will power to keep smiling and singing, and creating wonderful art work. I still treasure one of her creations, which she presented to me after the first successful round of treatment. We would celebrate our time with each other along with the parents and her younger brother. I would counsel her as well as her mother, who was trying to hide her stress with laughter for the sake of her loving daughter.
Continue Reading >> https://palliumindia.org/2023/02/salute-to-brave-marjita
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