Published on: May 8, 2025

It’s been a great and different experience for me dealing with patients and patience in the palliative care set up. Never knew that I would get such immense satisfaction while talking and caring for them, sharing their problems and being empathetic with them.

Initially I was not very confident as to how to deal with patients, but Sunanda from Pallium India guided me at every step and also helped me by coordinating with the Sukoon Nilaya team. Patients were hesitant to interact with me in the beginning but when I kept visiting them regularly they started talking to me freely. Their family members also cooperated with us. 

After taking training under Pallium India I joined Sukoon Nilaya Palliative care centre in Mumbai. Here are a few patient experiences that I would like to share with all:

A stroke patient had her left hand and leg paralysed, and she hated exercising as she found it difficult but slowly we helped her to exercise & made her comfortable. She was now happy & started responding well. Finally she was discharged & went home walking happily. 

A 15 year old boy from a tribal community fell down from a tree and damaged his back. He was hospitalized and underwent surgery but unfortunately his spine was damaged and he had to take the wheel chair for his life. I got him some story books and asked him to read in front of us and narrate it back to us. He enjoyed doing exercise with the hope that he would get well soon and go back to school. At the beginning he looked very sad but gradually I saw him smiling frequently. 

I would love to spend time with more patients. It gives me happiness, peace of mind & mental satisfaction.

Ms. Darshana Jain (Private Tutor and Volunteer, Mumbai)

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