March 2018 Newsletter
Pallium India’s Chairman, Dr M. R. Rajagopal, writes:
The growth of palliative care in India was clearly made visible at the International conference of the Indian Association of Palliative Care (IAPCON2018) from 23 to 25 February 2018 at All India Institute of Medical Sciences (AIIMS), New Delhi, preceded by two days of pre-conference workshops. Truly, a great academy feast, conducted with commitment and good time management. Congratulations to the organising team led by Professor Sushma Bhatnagar. She seemed to be everywhere all at the same time!
(Photo: Pallium India team at IAPCON2018)
Wilfrid Bruce Davis is a name that we remember with great joy. His services to palliative care in our country have been silent and phenomenal, including funding the complete construction of the Institute of Palliative Medicine at Calicut and continued support for decades to many palliative care services including Gauhati.
Year after year, young doctors have competed for the coveted Bruce Davis gold medal.
This year, the gold medal winner is Dr. Puneeth Rathore, resident doctor at AIIMS, New Delhi. He received the award from Shri Ashwini Choubey, minister of state for Health and Family Welfare on 23 Feb 2017 at Delhi.
Hearty congratulations, Dr Puneeth Rathore.
Despite the amendment of the NDPS Act of India in 2014, progress has been slow in terms of improvement in access to opioids for those who need it.
Thank you, International Association for Hospice and Palliative Care (IAHPC) for coming to help and organising a two-day workshop on opioid access at All India Institute of Medical Sciences, New Delhi on 21 and 22 February, 2018. It was a great idea to bring together Government officials and palliative care activists from several states.
And thank you, WHO (India) for supporting it.
‘Hippocratic’ wins the 2017 Accolade Global Film Competition Humanitarian Award – Award of Distinction
Congratulations to the wonderful people at Moonshine Agency for creating this beautiful, important and powerful masterpiece! This well-made movie about palliative care in India, through the eyes of Dr M. R. Rajagopal, has already won several accolades internationally.
Here’s to many more awards and recognition for your amazing work and dedication to affecting global social change!
Hippocratic: 18 Experiments in gently shaking the world is coming to USA and Canada.
Click here to attend a screening near you.
- KINGSTON: Wednesday, March 7, 2018 at 5pm
Queen’s University, The John T M Fraser Lecture Theatre, ssom 032A,
School of Medicine Building, 15 Arch Street, Kingston
- OTTAWA: Friday, March 9, 2018 at 5:00pm
Bruyere Auditorium, 43 Bruyere St. Ottawa, ON K1N 5C8
- NEW YORK CITY: Tuesday, March 13, 2018 at 6:30pm
Regal Union Square Stadium 14
4818, 850 Broadway, New York, NY
- BOSTON: Wednesday, March 14, 2018 at 5pm
Hosts: MassPI & Tufts Pain Research, Education & policy (PREP)
Tufts School of Medicine, 145 Harrison Avenue, Boston
De Blois Auditorium (Sackler Building, Room 108)
- SAN FRANCISCO: Wednesday, March 28, 2018 at 2:30pm
Special Guests: Dr MR Rajagopal & Dr BJ Miller
Hosts: Relief from Cancer, UCSF, Heal Initiative
UCSF Cole Hall, 505 Parnassus Ave, San Francisco
Hippocratic will also be screened at Minneapolis, Kansas City, San Diego, Washington DC, Seattle, Vancouver, Atlanta, and several other cities. Visit this page for more details: http://hippocraticfilm.com/see-the-film/
Students of Mar Baselios College of Engineering, Trivandrum, in association with Pallium India, organized a Wall Art program in Trivandrum on Saturday, February 17. With the help of artists, they painted beautiful images on the wall of Sri Moolam Club, Vazhuthacaud, illustrating the importance of palliative care. The paintings grabbed the attention of passers-by, and many stopped to watch the artists at work.
The program was inaugurated at 9 a.m. by the Mayor of Thiruvananthapuram, Adv. V.K. Prasanth.
More than 170m of city walls now carry their wall art, spreading their messages of compassion to those who pass by in the central spot at Vazhuthacaud.
For more pictures, please visit our Facebook page. https://www.facebook.com/palliumindia
The two day annual event on 3, 4 February 2018 was a grand success. You can see how full the hall was. The whole town emerged in the afternoon to take out a procession leading to the venue.
There were a lot of novelties. A basket of freshly cut organic vegetables replaced the traditional bouquet of flowers.
Two ministers – Dr Thomas Isac and Shri Thilothaman – stayed for several hours. The power of the community was made visible. Congratulations to the organisers at Muhamma and to Narayanan Puthukkudy, the general secretary of IAPC, Kerala.
Elisabeth Kübler-Ross’s son, Ken Ross, visited Pallium India on Feb 20, and spent some time with the team. He also donated books to Pallium India’s EKR library, much to the delight of Sheeba, who is in charge of the library.
The logo of DeCARE was unveiled at College of Engineering, Trivandrum on 14th February, 2018.
DeCARE is a technical initiative launched by National Service Scheme of College of Engineering, Trivandrum (CET) in association with Engineers’ Crew for Society and Environment (ENCRESE) and Pallium India.
DeCARE aims to identify several requirements of differently-abled people and try to fulfil those needs with the help of technology.
Pallium India’s staff and volunteers organized a food festival in Ernst & Young, Kinfra Park, Trivandrum on Feb 9, 2018, to raise funds for Kuttikoottam summer camp (summer camp for children of our patients).
Pallium India provides financial support towards the education of our patients’ children. Read more about Kuttikkoottam, our program that currently supports over 300 children, and how you can help: http://palliumindia.org/2017/06/childrens-education-program-you-can-help/
How close can a health professional get to a patient?
Opinions may vary regarding the ideal therapeutic distance; but we have only respect for Dany Shaji, a medical social worker in New Zealand, who got married to Tania Kurian on 3 February 2018 at Changanacherry. He made sure that some of his former “clients” who needed a wheelchair for their mobility attended the wedding. Suresh and Ratheesh have paraplegia and became friends with Dany when he used to work in Pallium India. They traveled some 130 km to be best men at the wedding.
You should have seen how bright their eyes were!
Elisabeth Kubler-Ross “On Hospice”
The All India Institute of Medical Sciences (AIIMS) has integrated palliative care with not just the oncology department but also with the pulmonary, psychiatry and emergency ward to give its patients a “complete care”.
For the first 22 months of his life Ayanda Khumalo was a normal child, living with his mother and grandmother near Durban, South Africa. Ayanda’s mother noticed an unusual swelling in his abdomen. She took Ayanda to the local district hospital where he was diagnosed with a rare form of cancer called Rhabdomyosarcoma.
The next 12 months were a tumultuous time for Ayanda and his family consisting of countless hospital visits, chemotherapy and radiotherapy sessions.
When a palliative paediatrician in South Africa saw too many negative stories appear on his Twitter feed, he decided to share some positive, inspiring thoughts of the terminally ill children in his care.
Alastair McAlpine, from Cape Town, tweeted: “I asked some of my terminal paediatric palliative care patients what they had enjoyed in life, and what gave it meaning. Kids can be so wise, y’know. Here are some of the responses.”
Post-traumatic stress disorder (PTSD) is more common in the dying, their families and the bereaved than you might think. Dr Louis Heyse-Moore, a retired consultant in palliative medicine, counsellor and writer, explains how recent advances in the treatment of PTSD may be relevant to improving support for the dying.
For a person on the street struggling every day to find food and shelter, a terminal diagnosis is a crushing burden. A nurse and doctor have founded a program which provides support to Calgary’s vulnerable citizens, where they need it most.
Despite his reputation, Dr. Bernard Lown, emeritus professor of cardiology at Harvard, a senior physician at Brigham and Women’s Hospital in Boston, and the founder of the Lown Cardiovascular Group, was treated like just another widget on the hospital’s conveyor belt.
What he needed was “the feeling of being a major partner in this decision,” he said. “Even though I am a doctor, I am still a human with anxieties.”
A middle-aged man* came to our ambulatory palliative care clinic with his family.
Before the visit concluded, the physician completed a brief physical assessment. As he worked his way through the neurological exam, he noted positively to the patient, “no loss of strength yet”.
At the WCNR conference, a session dedicatedly spoke about multitude of issues from neuro palliative care to migraine and Parkinson’s disease among others
For many years, former College of Nursing Professor Joann (Jo) Eland would lead a group of several nursing and other health science students on an annual journey to Trivandrum, India, where she taught a three-week course titled “Hospice, Pain and Palliative Care.” The course was co-taught and coordinated with Pallium India, a nongovernmental, nonprofit hospice organization that provides free medical care for many of India’s poorest citizens.
Picking up where Dr. Eland left off, the India Winterim course (now titled “Pain, Palliative Care, and Hospice – Learning from Each Other”) is now under the purview of Assistant Professor Stephanie Gilbertson-White PhD, ARNP.
Losing a loved one is the most difficult experience a human being can go through. Sometimes it can be difficult to just go through the day. With changing times, the traditional family and community support systems have decreased and it can be extremely lonely.
You don’t have to bear it on your own. We believe following information will help you understand your own or other’s grief better.
By Katherine Pettus, PhD
World Cancer Day asks us to reflect on how we can play our part, as a collective or as individuals, in reducing the global burden of cancer. The “global burden of cancer” is actually an aggregate of the very real burden that falls on individual people: on cancer patients, their family members and their caregivers. In the vast majority of cases, people face severe untreated pain, financial worries, often bankruptcy, and psycho-spiritual distress. My part in reducing that burden is to advocate for the mainstreaming of palliative care — which alleviates the “total pain” brought on by cancer and other life limiting illnesses — throughout public health systems. I do this because it is a matter of social justice, and because I witnessed my mother’s severe unrelieved cancer pain and could do nothing to help her at that time.
When you shop at AmazonSmile, Amazon will make a donation to Pallium India Inc.
Support us every time you shop!
The money you give will pay for essential free medicines for the poor, for their travel to the clinic or for schooling of their children, or other forms of care.
Please give whatever you can. No amount is too small.
To donate, please visit:
- http://palliumindia.org/donate/ (India)
- http://palliumindiausa.org/ (USA)
- Write to us: email@example.com
- Call us: +91-9746745497 (India) / +1-718-273-8597 (USA)
All donations to Pallium India are tax deductible.
- Mar 5, 2018: 6 weeks certificate course in palliative medicine and nursing (CCPPM, CCPN) at Trivandrum. Register: http://palliumindia.org/courses/ Contact: firstname.lastname@example.org / 8589998760
- Mar 7, 2018: Screening of Hippocratic in Kingston
- Mar 9, 2018: Screening of Hippocratic in Ottawa
- Mar 13, 2018: Screening of Hippocratic in New York City
- Mar 14, 2018: Screening of Hippocratic in Boston
- Mar 28, 2018: Screening of Hippocratic in San Francisco
- Apr 23, 2018: 10-day Foundation course for doctors at Trivandrum. Contact: email@example.com / 8589998760. Last date to apply: April 10
- May 14, 2018: 10-day Foundation course for doctors at Trivandrum. Contact: firstname.lastname@example.org / 8589998760. Last date to apply: May 1
- May 30, 2018: 3rd ICPCN Conference, Durban, South Africa. Visit: http://www.icpcnconference.org/
- Jun 4, 2018: 6 weeks certificate course in palliative medicine and nursing (CCPPM, CCPN) at Trivandrum. Register: http://palliumindia.org/courses/ Contact: email@example.com / 8589998760
Have Queries? Contact: firstname.lastname@example.org.
Find out more about our courses at: http://palliumindia.org/courses/
Pallium India’s Facebook page has over 7500 Likes.
We regularly post articles related to palliative care from around the world.
We’re also on Twitter: @palliumindia
Contact Pallium India’s Information Centre (9 am to 12 noon) for information related to palliative care and about establishments where such facilities are available in India.
Telephone: +91-9746745497 or E-mail: email@example.com
Address: Pallium India, Arumana Hospital, Perunthanni, Trivandrum
For more details, please visit: http://palliumindia.org/info-centre/
Would it not be good to start the morning with a cup of nice hot tea?
Perhaps it would be even more appreciated when one is battling a disease in the unfamiliar environment of a hospital. It is not just the tea; perhaps it is also the warm feeling that someone cares.
Mrs & Mr. Rakesh Nayyar and their friends have been serving chai and biscuits for 600 to 700 patients and their family members at Kidwai Institute of Oncology, Bengaluru, since 15 August 2015. They call their program “Mission Chai”. Chai with compassion!
In the picture you see them with Professor Dr Linge Gowda (right), the director of Kidwai Institute of Oncology, a Regional Cancer Centre. He is also a Palliative care physician, we are proud to say.
Our respects to you, Mrs & Mr Nayyar and friends.
posted by palliumindia in Newsletter